The Philly Big Climb is THIS SATURDAY!


Hey Philly Peeps! My oldest and dearest friend, Lauren "Bagel" Bacal Spike is once again leading the Philly Bleeds Greene team for the Big Climb at Lincoln Financial Field this Saturday May 11, 2024 supporting the Leukemia & Lymphoma Society.

Please donate to Lauren's campaign.


Talkin' Loud and Sayin' Nothing

Fri Dec 23 2022 -- Day +372
Blogging Tunes: SomaFM Christmas Lounge

'Twas the night before Christmas and all that jazz.  Yeah, you read the number right: day +372.  That means (that without much fanfare) more than a year has passed since my second stem-cell marrow transplant.

So now do I have three birthdays or should we not count the second one (i.e. the first transplant) since we essentially had to do a redo a year (and a week) ago?

I don't know.  I can't even keep track of all this mishagas anymore.  People have been asking why I haven't been writing.  The honest answer?  I haven't really wanted to.  When my AML relapsed in Sept 2021, without really even thinking about it, I just started blogging again.  Like... "OK, here we go again. JGWKIA 2.0!  Let's go!" And, while kicking its ass is clearly is the desired result -- and, touch wood, we're well on our way thanks to Dr. Damon, the UCSF team, Martin, DKMS, BeTheMatch, LLS, and so many others -- the whole idea of telling the whole recovery story again... it just kinda fizzled for me a few months ago.

It's not just the blog... I've pulled back from most social media -- though I did just post on Facebook this morning about the epic day trip I had with the boys to Monterey and Point Lobos yesterday -- and just generally don't feel the same desire to put it all out there, ya know?

Wendell keyed on this pretty early on.  When I told him about the history of the blog and how I was reviving it for AML 2.0, he probed as to whether it really served me to just "handle it the same way again" -- i.e. with this whole #jgwkia approach.   

The truth is, the first time around, I was so overwhelmed with all the communication from friends that I didn't know what else to do.  Authoring updates here and pointing y'all to 'em seemed like the only possible way.

But a lot of time has passed since I was first diagnosed back in November 2010.  Blogging was not only appropriate then, it was cool.  Now it seems like everyone is live-streaming/posting/blogging all the time on myriad social channels.  And I don't really feel like broadcasting my life anymore, so I'm just not going to!

So... wanna connect?  Hit me up on email, text or Facebook Messenger and we'll connect.

Until then... huge thanks to those of you helped out doing this crazy 2022: those who helped with meals and rides in the early months of recovery; those who helped with my crazy job transition; those who reached out with support and well-wishes during the Phillies run; those who contributed to Light the Night 2022; and anyone I'm forgetting.  Heather and I appreciate you more than this silly blog entry can express.

So what now?  Well, this holiday season (and well into next year at least) I'm just going to try to focus on what matters most: my personal well-being and that of my family.  Will I ever post here again?  I don't know.  But while this blog post title sums up most of Floyd's existence, the only Talkin' Loud and Sayin' Nothing ima do is funkin' out with the Chum dudes.

Go Birds!

iwkia...a.

Comments

Popular Posts