Who Knew a Day Would Turn Into a Week?
Friday January 7, 2022 - Day +22
Blogging Tunes: SiriusXM Phish Radio: 12/31/2021
Howdy friends, supporters, and blog readers. Apologies for the lull in posts. This week has been dominated by extreme fatigue. I finally got a solid 10.5 (mostly uninterrupted) hours of sleep last night, so I'll try to use this little bit of morning energy to get something posted here.
And how perfect... SiriusXM Phish Radio just started a re-broadcast of the 12/31/21 show which Heather and I streamed (and loved) the night I got home. yeP!, as expected (and mentioned on the last post) UCSF discharged me at around 10:00a on 12/31/21, getting me home in plenty of time to get settled and stream the NYE Phish show (from the Ninth Cube, since MSG was canceled.)
Here's a live-stream-jumping-kitty action shot:
Seeing Phish live on New Years Eve was a tradition in '90s. I think I saw 8 of the 10 NYE shows that decade starting with 1990 in Boston (with Chucklehead!) Of course, I missed Big Cypress (with the famous midnight to sunrise set) since I moved to California in Spring '99. In fact, I was working the Y2K shift at Weblogic while Phish was playing in Florida. I think we all got $2500 bonuses for working that 8:00p to 4:00am shift, right, @Gaurav? 😂
Since the kids were born, the tradition has been the webcast. When the kids were younger, being awake for "Happy New Years" was the goal. This meant staying up til 9:00p PST which is when New Year's would occur during the Phish Stream (since the shows were always at MSG in New York)
It's hard to describe how comforting and grounding the show was for Heather and me... and the band really put on a nice show.
For comparison, here are a few from NYE 6 years ago. :)
Of course, being home with family and the cats is priceless... the isolation of the hospital takes its toll in so many ways. Here some other joys of being home:
- Sleeping in my own bed
- Taking a real shower in a real bathroom (and not being connected to an IV!)
- Taking a walk around the block in my neighborhood
- Eating non-hospital food! (appetite and taste buds are so-so, but better than December)
- Hugging (and hanging out with) my wife and kids
- Hugging my cats (well, one in particular)
"The earliest you can go back to school or work is about 4 months from the time of your transplant. This time frame can vary from person to person and depends many things.
- I go to UCSF Mon/Thu for labs and then meet with Dr. Damon (or delegate) to review where things stand. Based on the numbers, we'll tweak the meds or not
- BTW, thanks for all who signed up for rides in Jan. All dates are now filled!
- There will likely be opptys to drive (and catch up with!) jg in Feb too. If you want to get involved, just text or FBM me.
- Every day I need to be hooked up to an IV for 3-4 hours to get a bag of magnesium oxide
- Nurse Heather gets it all hooked up, the mag flows, and I get really tired as it's happening
- I still have a permanent port with three lines hanging out of my chest, so it's pretty easy to do blood draws and IV stuff. I'll spare y'all the pic.
In other news, Heather's mom arrived yesterday and will be staying with us for a few weeks to help out around the house and give Heather a much needed break from essentially being a single parent while I'm going through this. Thanks, Gramma!
But what would make Martin's bad-ass-self even MORE bad-ass? The same shot with his Eagles beanie (and a little more fierceness in his expression!) 😂