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You ask what is the quality of life?

Blogging Tunes: David Gilmour - David Gilmour

This is going to be quick… matter of fact… terse.  Short and sweet.  Because it’s really I have.  Sorry for not writing more.

The laptop situation has not improved despite the UCSF IT guy assuring me that it was a “number of leases” problem and that they were going to release them all so my laptop could connect.  No dice.

Why is this worth writing about?  There’s some basic work stuff that I’d really like to do which is going to be much harder — if not impossible — on this 8+ year-old iPad. Maybe the Vineti IT guy will have some ideas.

This chemo regimen is absolutely knocking me out.  I’ll spare you the details on how much IV I get and how many pills I need to take per day.  It’s insane.

And all the stuff they are giving me for nausea is maybe me so tired… but the steroids are keeping me up.  We need to find a balance.  Also, the bed is just horribly uncomfortable.  I’m barely eating too.  This whole timeline is way accelerated this time.  No idea how I’m gong to do this for 3 more weeks.  It’s so much harder than last time.  

Hopefully H is coming to visit today.  I definitely need to see her.

I know everyone reading this just wants to do something for me.  Unfortunately, there’s really not much to do.  Sounds like some folks have been in touch with H.  Thanks for that.  It’s just that the “hey, how ya feelin’” texts don’t help.  Sorry.

Even writing this short little blog entry completely wiped me out.  To my work POLTers, I’ll be in touch on slack today or tomorrow to talk about a bunch of stuff.  Hang in there.

-jg


Comments

  1. Wow, as hard as it is to read the details of your situation, we can only imagine what it's like to be living through it. Stay strong my friend. We're all with you and thinking of you every day.

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  2. As you know from KICKIN ITS ASS IN 2010, there is no way to know how you are going to possibly "do this" until you just do it. You are mentally strong, and stubborn as an old goat, so you WILL do this.
    Much love to Heather, Floyd and Orion!

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  3. Oh John!! Soooo sorry to hear!! Sending positive energy and vibrations and LOVE and very, very BIG HUGS. ❤️❤️❤️❤️

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  4. Looks like your doctors are not joking around this time. Gave you the good meds. I'm so sorry, i remember my second chemo being much harder than the first. I know it's not helping, but chemo is basically "almost killing you and pulling back at the last moment so we only kill cancer", so it could be the more serious cocktail they are throwing at you. So sorry man, hang in there. For me ginger tea helped a lot with nausea, add a bit of honey and lemon into it - helped me a lot, my wife used to bring me a full thermos almost every day.

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  5. Lots and lots of Love JG! ❤️
    XO KAte & Sean

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  6. So sorry to hear about this, JG. ywkia!!

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  7. Thinking of you and the family JG. I wish we could all take turns taking some of this for you to help you get through it. I'll continue thinking positive thoughts and saying prayers for your speedy recovery.

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  8. Sorry of course to hear your news.

    If your primary reason for wanting to use the laptop is work, my gut feeling is to just not worry about work. But that's your call to make, not mine.

    Don't have enough info to know the details, but if there's some problem connecting your laptop to the hospital wifi, but the ipad connects fine, can you just run a hotspot on the ipad and have the laptop connect to that?

    https://support.apple.com/en-us/HT204023

    Not sure if that will allow you to bridge one wifi to another, though. It might only be for bridging cellular and wifi.

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  9. Thank you for taking the time to share what you are going through, both the processes and your emotions. We love you.

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  10. Sending you positive vibes. Kick it's ass JG!
    Holly Keenen (LLS)

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  11. Hate to hear this JG! Take this one day at a time some days one hour at a time. Love you my friend!

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  12. KEEP ON TRUCKING !!! Never ever ever stop fighting.

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  13. Some tech notes. De-prioritize/ignore as necessary!

    - In my experience you cannot tether to an iOS device to leverage its WiFi connection. You can only tether to its cellular connection.

    - This is a long shot, but have you gone in and explicitly renewed your DHCP lease, to see if it jars anything loose? I.e. System Preferences → Network → Advanced... → TCP/IP tab → "Renew DHCP Lease" button? Maybe it would help shake out the remote router's cache of stale leases? I've had it work before in similar situations....

    Hang in there JG.

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  14. Sending hugs, JG. If the power of prayer and support is real, and there have been some interesting studies to suggest that it does make a difference, you are getting supercharged for your recovery with all the love and good thoughts being channeled your way. I know I'm redoubling mine. xxxx

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  15. Gutted reading this; hanging in there JG. Know that there are MANY MANY people pulling for you. - Jordan

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