May 31, 2024: jgwkia has moved to substack

JGWKIA (jg will kick its ass) has moved to substack. You can access (and subscribe to) it by clicking here.

The full URL to my substack is There will be no more new posts here, and eventually will point there, not here. Bye bye Blogger!

You can't hide from yourself, not at all

Blogging tunes: Howard Stern 3/22/2010

No, that's not a typo, I'm exactly one year and one day behind on Stern.  Believe me, I know what day it is... it's 3/23/11 - Orion's first birthday.  Happy Birthday, little O-man.  Wish I could be with you:

Orion in the lobby at our hotel in Plymouth Meeting, PA (3/20/2011)

Actually, I just changed the audio from Stern to the Phils/Rays pre-season game.  I downloaded the MLB At-Bat iPad app (thanks, Loftie - I still got some store credit!) and the video of this game is supposed to be available, but of course, the network here is too slow.  I guess I'll be listening to a lot of baseball here.  I just don't know what I'm going to do about Flyers playoffs.  I don't think there's an audio-only option for NHL is there?

Anyway, this post isn't more bellyachin' about network issues, it's about the schedule of events over the next week or so here at UCSF.  Today is day -7, meaning we're 7 days away from the actual stem-cell transplant.  The schedule I was given shows from day -8 (admission) to day +11 -- that's roughly 3 weeks.  I was told I'd be in here for closer to 4 weeks, so I'm not sure what happens on day +12 onward.

Date   Day    Treatment                           Supportive Care
3/22    -8    Admit/line placement
3/23    -7    Busulfan 0.8mg/kg IV x 3
              (Busulfan levels drawn after first dose)
              Fludarabine 30mg/m^2
3/24    -6    Busulfan 0.8mg/kg IV x 4
              (Busulfan adjustment if needed)
              Fludarabine 30mg/m^2
3/25    -5    Busulfan 0.8mg/kg IV x 4
              Fludarabine 30mg/m^2
3/26    -4    Busulfan 0.8mg/kg IV x 4
              Fludarabine 30mg/m^2
3/27    -3    Busulfan 0.8mg/kg IV x 1
              Fludarabine 30mg/m^2
3/28    -2    Donor collect #1                     Tac 0.007 mg/kg IV
3/29    -1    Donor possible collect #2
3/30     0    Peripheral Stem Cell Infusion
3/31    +1                                         MTX 5mg/m^2

The rest of the "plus" days are pretty much the same as the Day +1.  I'm sure they will be monitoring all kinds of stuff, giving me additional meds, etc., but this is all the info I have right now.

So yesterday I got the Hickman Line, and this morning we started the chemo.  For the Busulfan, they need a special machine (the one with the green display) -- not sure why, but here's a pic of my Trans Pal from this morning:

It's gonna be crazy walkin' with that thing, but after the Feud, it'll be time for laps.  It's been a rough adjustment, but I'm feeling a bit better now than I was this morning.  More posts coming this week, so come back often.

I will kick its ass,



  1. So.. more chemo? Assuming this is to make sure that they've made sure that they made sure that you're confirmed to surely still be in remission?

    Flubdramine? Bulshifan? Fhqwhgads!

    Happy Birthday to Big O notation..

  2. This chemo is to annihilate my immune system and kill my bone marrow so the donor's can be infused. Wacky stuff.

  3. KIA Jaggu... Miss ya.. Happy Birthday to 'Owion'..

  4. John, keep on fighting!
    Virtual hugs to Orion and the family.
    From Belgium with cheers,

  5. Wow, that's some contraption you have there... you should get some prinouts of people's faces and hang them up so you can take walks with them. Maybe talk on the phone at the same time - just like a leisurely stroll down the boulevard with a buddy. Mostly.

    Thanks for all the updates - keep your eyes open for a couple of little iOS gifties for when you get tired of Howard.

  6. This comment has been removed by a blog administrator.

  7. @Amanda: well, the blog is on blogger (formerly blogspot) which was bought by google, so you can use a gmail account. I'm guessing you don't have one. I'll send an invite to your hotmail account.


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