I guess it's been a long time since I've posted. Not to worry! Things have actually gotten progressively better this week -- I just haven't found a comfortable way to use the laptop (until now) and the iPad just isn't great for writing long passages. I know, that's kind of a sorry excuse, so I'll make up for it with an extra long Christmas post.
So first thing's first. Merry Christmas and Happy Holidays to everyone reading this blog. I know I sound like a broken record, but the love and support you all have shown to Heather and me has been simply incredible. I'm sure the good karma is coming back your way and you're all having a healthy and happy holiday.
Much has happened since my last post. For starters, they moved me across the hall (from 1118 Long to 1156 Long). Apparently, the ventilation system needed some repairs in 1118. Makes sense. It was definitely stuffy in there, even with the fan on. 1156 has North facing windows -- the view is absolutely spectacular. Here are some pics from my crappy BB camera. Click on an image for higher res. Can you see the Golden Gate Bridge?
My appetite is slowly returning, and I'm able to eat a few more foods. Last night I ate all of my cheese ravioli! If you've never had chemo, you can't possibly understand this, but imagine your favorite foods in the world tasting like cardboard. That's what can happen post-chemo and it totally sucks. I've lost over 20 pounds since this whole thing started (was closer to 25 but I put a few pounds back on in the last couple days) and it's really important that I don't lose any more.
Other than food challenges, things are going well. My counts aren't up yet, but they're not supposed to be, so that's fine. I seem to have more and more energy each day, and my head's in a pretty good place about everything that's happened and the next steps. Speaking of which, we do not yet know if my brother is a match. We'll find out on Tuesday or Wednesday. Next week should be pretty uneventful, so drop me a line if you want to schedule a visit. :)
Music has become a bigger and bigger part of my spirit recovery. My good buddy Lou (LLB) sent me a little WD drive with a bunch of music on it -- thanks, Lou! (Even if you forgot Fall Phish!) :)
Listening to both new and old music with the QC-15s (Thanks Sam/Lucy/Adam/Mary!) can be extremely theraputic:
Next, there are some amazing volunteers here. This awesome woman, Ann, who is a cancer survivor herself, came to visit me a couple days ago. She just wanted to spread some holiday cheer and see how I was doing:
We talked for about an hour about all sorts things, and, on top of all that, she gave me an awesome quilt that she made herself! What a way to brighten up the room:
Heather also found an amazing woman to come give me an accu-pressure massage. She was absolutely terrific not only with the accu-pressure and the physical stuff, but her mind-body-spirit was exactly what I needed. She's had over 30 years experience doing this stuff as well as major experience with caner patients. We really connected -- hoping to see her once a week.
Now all the while, Floyd has been in Massachusetts with Gramma and Grampa (Heather's folks). Heather's mom writes us these "Floyd-o-grams" just about every day. What's a Floyd-o-gram? It's an email written by Gramma as if it were from Floyd. For example, here's a snippet from one a few days ago:
Today we had the dishwasher repairman come. Gramma gave me a chair so I could watch and give him instructions if he needed them. He was so fast that he didn't even need my help.
Here's one more snippet and pic:
I helped Gramma make a date nut bread to take with us today. Gramma cut up dates, and I kept asking her to give me a prune. She said it wasn't a prune. Finally she let me eat a real prune and then I knew it was different. I wanted more prunes but she wouldn't give me anymore. Hmmm, wonder why not...
I broke the eggs for her and did a really good job. She asked me to help stir the batter, but it looked really weird so I said no thank you to that idea.
While we're doing pictures of Floyd, the other day, Uncle Jeremy (Heather's brother), Autie Kara (his wife), Floyd, and Grampa went on a little hike. Here are some pics that Jeremy sent:
That last one is titled "Evil Grampa" -- he does look a bit dia-boe-lick'll, doesn't he?
With Floyd in Massachusetts and awesome friends minding Orion most days, Heather's been able to come visit me a lot this week. Daytime visits are a lot better all around. Yesterday, we pulled the shades and watched Inception on my laptop (Thanks, Mickey!)
I had never seen it before -- what an amazing movie. I thought the top was beginning to teeter at the end. You?
At some point this week, I'll probably watch Trading Places. Gotta watch that movie once a year between Christmas and New Years, you know? I'll also probably watch some of the MIA/LAL game. I don't really care about pro basketball, but that's a pretty good match up. More excited to watch the Cowgirls lose tonight and see the Iggles clinch on Sunday. Of course, if the Giants lose to Green Bay -- which they probably will -- Eagles will have clinched the Division before they even take the field against the hapless Vikings. Still the #2 seed is possible, so let's keep winning, boys!
Unrelated, one of the bummers about being here so long (during the holidays) is that I missed all the holiday parties. Cyndi Lauper played at the Salesforce holiday party -- really wanted to go to that. And two close friends had parties that I really wanted to attend. Alas, getting better is more important. Folks at Dave and Laura's party signed a card for me. Dave (who's a
Once again, Happy Holidays to all!
I will kick its ass,